NoahDavid's Journey
TRAPS and LM
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21 Comments
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Kris Carrillo
02:59 AM on October 25, 2009
What a journey your family has been through! I can only imagine how difficult it has been for all of you. I sincerely hope Noah's condition is greatly improved from any NIH treatments he may receive. You have such a beautiful, courageous son! Thank you for sharing and updating! It goes to show, we can get through anything with a loving family there to support and care for us! God bless.
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Michelle Hayter
12:40 PM on July 20, 2009
Sarah,
I met you in Chariton, I'm from Walnut Grove Mo and our church was on mission there. I just wanted to let you know that we are continuing to pray for Noah. Hope to see you in Everton in September! Let us know if there is anything specific we can pray for. "Hi Noah"
I met you in Chariton, I'm from Walnut Grove Mo and our church was on mission there. I just wanted to let you know that we are continuing to pray for Noah. Hope to see you in Everton in September! Let us know if there is anything specific we can pray for. "Hi Noah"
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lana albright
09:42 PM on February 11, 2009
its been a long time, i miss you guys. i thank bout you guys all the time and you guys are always in my thoughts and prayers. my heart goes out to you guys. love you guys.
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Corinne
01:54 PM on February 02, 2009
Hey, guys. Just wanted to say hi and thanks for keeping us updated. We're praying for you, Noah, and your financial issues.
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Michelle Thompson
08:39 PM on January 26, 2009
Hello...you probably know us from the LM support group on yahoo. I wanted to let you know that we live in MO also. My son is Andrew age 19. He has LM of the face, neck, airway. You have a great site here!
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Jennifer Boehme
08:31 PM on January 26, 2009
My daughter Brittney suffers from T.R.A.P.S. also. We are fortunate that our medical is covered through the military. However, for people like yourself, Karen Silk is developing a website to raise money to go to helping families suffering with financial difficulities due to TRAPS. I have added it to my FACEBOOK and I am helping her do anything I can to get it rolling. The sooner the better and I have a lot of ideas on how to raise money. Any way we can to get the word out about this disease!!! Check me out on FACEBOOK .
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Aunt Kelly
07:43 PM on January 25, 2009
I love you Noah! I always smile when you hug me. Love, Aunt Kelly
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Valarie
08:10 PM on January 24, 2009
Noah is absolutely precious! 
Thank you for the education about this disease(s), though I am so sorry that you, Noah, and your family is going through it. Fantastic job with the site!
Thank you for the education about this disease(s), though I am so sorry that you, Noah, and your family is going through it. Fantastic job with the site!
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Claire
11:21 AM on October 20, 2008
Hi Noah,
My son Angelo has a CH which is mostly superficial and located just under his chin. I think he must be a similar age to Noah. You've done a great job on the site and I wish you luck with your treatment programme.
My son Angelo has a CH which is mostly superficial and located just under his chin. I think he must be a similar age to Noah. You've done a great job on the site and I wish you luck with your treatment programme.
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