For in the day of trouble he will keep me safe in his dwelling; he will hide me in the shelter of his tabernacle and set me high upon a rock.
- Psalms 27:5
We are currently having Noah evaluated by the Vascular Team in Boston and hope to get some valuable information about a management plan for his LM from there.
He is also currently being reviewed by NIH (National Institute of Health) in Maryland for TRAPS. He has been accepted to be seen and will hopefully have an appointment by the end of 2009! We are raising money for the trip to Maryland.
Noah is needing dental work and will have to be put under anesthesia to have it done. He will be seen in St. Louis on Aug. 25th for an evaluation.
At this time, Noah is on a bi-yearly checkup schedule with his ENT specialist and Rheumatology Specialist in St. Louis, MO.
Updates will be posted as we find out more information.