NoahDavid's Journey

                     TRAPS LINKS

Blessed is the man who trusts in the Lord and has made the Lord his hope and confidence.
                                                                                      - Jeremiah 17:7

• ACR:  Enbrel (Etanercept) in TNF-Receptor Associated Periodic Fever Syndrome-2001
• GENERIC NAME:  etanercept, BRAND NAME:  Enbrel-2005
• etanercept
• Prednisone
• Systemic steroids-2008
• Doctors' Answers to "Frequently Asked Questions" - Prednisone-1999
• Kineret (Anakinra)-2009
• Persistent efficacy of anakinra in patients with tumor necrosis factor receptor-associated periodic syndrome-2008
• Dramatic improvement following interleukin 1beta blockade in tumor necrosis factor receptor-1-associated syndrome (TRAPS) resistant to anti-TNF-alpha therapy-2008

• Cleveland Clinic Department of Rheumatic and Immunologic Diseases-2009
• RECURRENT FEVERS RELATED TO A GENETIC ANOMALY
• Hereditary Periodic Fever Syndromes-2008
• Researchers Discover Genetic Mutations that Define a New Family of Inflammatory Diseases-1999
• TRAPS-2001
• NIAMS Reasearchers, Partners Discover Gene Mutations-1999
• Hereditary Periodic Fever Syndromes-2005
• TRAPS everywhere!-2006
• TNF receptor associated periodic syndrome-2008
• TNF Receptor–Associated Periodic Syndrome(Familial Hibernian Fever)-2005
• T.R.A.P.S.-2005
• Amyloidosis-2008
• Genetic and Rare Diseases Information Center

• Falling into TRAPS – receptor misfolding in the TNF receptor 1-associated periodic fever syndrome-2007
• Mutant forms of tumour necrosis factor receptor I that occur in TNF-receptor-associated periodic syndrome retain signalling functions but show abnormal behaviour-2004
•  "Periodic fever" without fever: two cases of non-febrile TRAPS with mutations in the TNFRSF1A gene presenting with episodes of inflammation or monosymptomatic amyloidosis -2006
• Multiple sclerosis and the TNFRSF1A R92Q mutation: clinical characteristics of 21 cases-2008

• Adrenal and Gondal Hormone Variations during a Febrile Attack in a Woman with Tumor Necrosis Factor Receptor-Associated Periodic Syndrome-2008
• Failure of anti-TNF therapy in TNF-receptor-1-asccociated periodic syndrome (TRAPS)-2006
• Glomerulonephritis reported with TNF receptor disease-2008
• Tumor Necrosis Factor Receptor-Asscociated Periodic Syndrome-A Novel Syndrome With Cutaneous Manifestations
• Periodic Fever, Familial, Autosomal Dominant-2009

• Autoinflammatory Diseases: An Update of Clinical and Genetic Aspects-2008
• CJO-Abstract-The tumour necrosis factor receptor-associated periodic syndrome:  current concepts-2005
• Treatment of the Nephrotic Syndrome with Etanercept in Patients with the Tumor Necrosis Factor Receptor–Associated Periodic Syndrome-2000
• TNF-receptor associated periodic syndrome may be treatable with TNF receptors-2004

• NIH (National Institute of Health) Inflammatory Biology Section AT THIS TIME, THIS INSTITUTE OFFERS FREE TREATMENT FOR PATIENTS WITH TRAPS

• Collin
• Maddy Rose

• Angel Flight "People Flying People in Need"
• Ronald McDonald House Charities
• Project Linus
• Uplifting Athletes
• Fundraisers for People in Need-we do fundraisers for people in need, just email us

• TRAPS Support-Yahoo group based in Australia
• TNF Receptor Associated Periodic Syndrome Community
• The Children's Inn Community -Discussion boards for people enrolled in a US-based TRAPS study
• Lifted Up...From the Deep
• 
• This book tells the story about an average-day mom who went through one of the worst tragedies that can be imagined - the loss of a child. Drawing upon her own struggle for hope, Kim Simmons paints a tapestry with words of God's comfort and love. Lifted Up From the Deep will bless and strengthen anyone seeking to find God in the valley of the shadow of death.